In October, 2020, Menai-Davis’ five-year-old son Hugh was diagnosed with rhabdomyosarcoma, a soft-tissue cancer where tumours can develop in any part of the body. Over the following six months Hugh bravely underwent extensive chemotherapy and radiotherapy treatment.
In May the following year, he rang the bell at Addenbrooke’s Hospital to signal the end of his treatment as an inpatient. Tragically, Hugh suffered an aggressive relapse in late summer and died on September 18, less than three weeks after his sixth birthday.
It was the worst of times for Ceri, his wife Frances and their family. And yet out of such sorrow, the Hertford couple have created something very special. They have established a rapidly-developing charity called ‘It’s Never You’ supporting parents of children with cancer.
The charity has already raised over £200,000 and at its hub is an app (‘The Children’s Cancer Platform), promoted in a growing number of children’s hospitals, which has assisted in growing a community of parents just like Ceri and Frances. And for the Menai-Davis family, It’s Never You is acting as a powerful legacy for Hugh through which his courage and kindness live on each day.